Hospices Civils de Lyon

Hospital with this head office at 3 Quai des Célestins, 69002 Lyon, France, N° SIRET 266 900 273 00019, represented by M. Raymond LE MOIGN acting as General Manager,

Hereinafter referred to as “HCL”

HCL hosts the clinical environment of the project

HCL is the sponsor of the project, initiates biomedical research on human beings, ensures its management and verifies its financing.

The Cell Biology Center (CBC) of the Lyon University Hospitals (director L. Schaeffer) is in charge of the cell culture from patient’s samples for diagnostic purposes (blood, skin, muscle, air ways, amniotic liquid …). The cells derived from the samples nurture a cell biobank hosted by the CBC that harbors more than 50 000 cell lines from patients with various pathologies. CBC has longstanding experience in biobanking, especially primary muscle cultures. Since 2011, CBC has the NF-S96 900 certification.

Carole Vuillerot is the head of the department of Pediatric Physical Medicine and Rehabilitation (PMR), l’Escale at the Lyon University Hospitals , which is in charge of the follow up of SMA pediatric patients (35 pediatric SMA patients of whom 25 under treatment). She has long been promoting the participation of SMA patients in multicentric studies ranging from natural history studies (NatHis SMA) to therapeutic trials (Oleos / Sunfish/ Jewelfish) including studies related to development of outcome measures. The pediatric PMR department is included in a large pediatric hospital (Hospital Femme Mère enfant) allowing multidisciplinary involvement of different specialists in paediatrics (orthopedic surgery, child neurology, pediatric pneumology and pediatric nutrition) to the clinical part of this project.

Laurent SCHAEFFER
Carole Vuillerot